NARCOLEPSY RESOURCE GROUP
Links for Parents of Children with Narcolepsy
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Narcolepsy Kids and Parent Support Group - fb group
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My Child Has Narcolepsy - an article
Researh Links
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NCBI Pub Med -"The psychosocial problems of children with..." "significantly higher rates of behavioral problems and depression. Again, to a significant extent, their quality of life was poorer and they had more educational problems." "A range of psychosocial problems can be identified in children with narcolepsy."
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Recognition and Management of Narcolepsy - (pediatrics) this will lead you to the NIH/ NCBI site and ask you to click on a pdf. It may open, or it may not. The following document was downloaded when I clicked on "available as a pdf". Click here to view if you don't want to go to the site or download to your computer:
Support for Family Members
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Family Members of People with Narcolepsy - fb group
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Families with Narcolepsy - fb group
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Married to Narcolepsy - fb group
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SOUND Ireland - website
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SOUND Ireland - on fb
Helpful Links
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Bullying and Youth with Disabilities and Special Health Needs
"Youth with disabilities often have Individualized Education Programs (IEPs) or Section 504 plans that can be useful in crafting specialized approaches for preventing and responding to bullying."
"...civil rights laws protect students with disabilities against harassment." -
Bandaids and Blackboards - This is a site about growing up with medical problems
